In honor of Sensory Processing Disorder (SPD) month, I put together some helpful resources and tips for families who are having trouble explaining their child to others.

Many families that I work with who have children affected by Sensory Processing Disorder (SPD) often struggle with how to explain their child’s “behaviors” to family members, friends, teachers, and other children. SPD, like many, developmental differences is “hidden.” Kids don’t wear signs that they have it and often how children communicate their challenges is read as a “behavior problem.”

Have you ever been in a loud restaurant or been overly stimulated and just wanted to turn everything off? That is how many children with SPD feel! Parents often feel judged in the grocery store, on the playground, and most public spaces because their children often have unexplainable tantrums due to sensory overload.

Families need support in their community, not judgement. I encourage family members and friends to ask parents to tell them about their child and what they need to be successfully included in an activity. Often, a few small adjustments can be made to have a fun filled playdate or family gathering!

What is Sensory Processing Disorder (SPD)?

In her bookSensational Kids: Hope and Help for Children With Sensory Processing DisorderDr. Lucy Jane Miller describes Sensory Processing Disorder as a complex disorder of the brain that affects developing children and adults.

In short, SPD affects the way individuals process information from the five senses, as well as sense of balance, movement and position in space.

SPD is more common than you might think, affecting as many as one in 20 people, in varying degrees of severity. You may have elements of sensory issues, such as being particularly sensitive to certain noises or textures, like a tag on the back of a shirt.

Kids with SPD aren’t necessarily sensitive. Some don’t sense pain or textures the way others do, and might seek out sensory input. Many parents report children frequently spinning, crashing into furniture or mouthing on objects. Other children might flat out refuse to eat certain textures or temperatures. The difference between a finicky child and a child with SPD is that the child with SPD will often react in what you would consider a highly over the top manner, such as prolonged screaming and crying.

Does my child have SPD and what should I do if I suspect she/he does?

There are several red flags for SPD  that you can share with those that you feel may be doubting your concerns about your child. Sensory Processing Disorder (SPD) is often misdiagnosed as ADHD, Autism and other developmental disorders. Pediatricians and teachers are still being educated about how to recognize the signs of SPD.

If you have concerns that your child may have SPD, please contact me for a developmental screening and a list of referrals for an OT (Occupational Therapist) evaluation.

What is Sensory Processing Disorder (SPD) aka Sensory Integration Disorder?

Check out the SPD Foundation’s website for helpful info! It was founded by Dr. Lucy Jane Miller, one of the leading researchers and experts on SPD

Blog posts worth sharing with family members and for great resources!

A mom’s explanation of Sensory Processing Disorder and how she educates others!

Hartley’s Life with 3Boys top blog posts about SPD: incredibly helpful info and resources for families!

A wonderful post by a mom about what it is REALLY like to parent a child with SPD

The first SPD focused store! Located right here in Chicago in the Lincoln Square neighborhood! Families outside of Chicago can order online and call to discuss items they are interested in learning more about!

Sensory Kids Store

Founded by a mom and staffed with folks who are knowledgeable! Talk to your OT before going for suggestions about items that might support your child at home and in school. Kids are encouraged to come play and try out items before purchasing. The wonderful owner, Ellen, consulted and tested products with kids and therapists. She has stocked everything you can think of and more: clothing, fidgets, items for the classroom, toys, furniture, and even…hair products!

Books

I encourage families to share some of these with your child’s teacher and school library! Read-a-loud time is a wonderful time to help talk about SPD in a classroom with peers.

This is Gabriel Making Sense of School: A Book About Sensory Processing Disorder

 

Arnie and His School Tools: Simple Sensory Solutions That Build Success

 

Squirmy Wormy: How I Learned to Help Myself

 

Sensitive Sam: Sam’s Sensory Adventure Has a Happy Ending!

 

Why Does Izzy Cover Her Ears? Dealing with Sensory Overload

 

Answers to Questions Teachers Ask about Sensory Integration: Forms, Checklists, and Practical Tools for Teachers and Parents

 

The Out-of-Sync Child: Recognizing and Coping with Sensory Processing Disorder, Revised Edition

 

Sensational Kids: Hope and Help for Children with Sensory Processing Disorder

 

 

 

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All of Chicago is buzzing about the CPS Teacher strike! Chicago PLAY Project’s pals over at the wonderful and inclusive, Wishcraft Workshop, asked for some tips on how talk to children with special needs about the possible strike. Looking for great programs to take your children to during the strike? Check out this Families In the Loop guide. Here are a few tips for supporting a child with special needs during the strike!

1. Stay Calm and Carry On!

Minimize talk about the strike with your children. Shut off the tv, turn over the paper with images of protesters and stay calm. Many children are not old enough or able to comprehend what the word strike really means. The pictures and sounds of protesters can be overwhelming and a little frightening. A strike is an event that is beyond any of our control which only raises anxiety.  For a child, this will just be a school break.

2. Reassurance + Routines

Reassurance about continuing home routines as you do over other vacation periods is the best thing you can do.

For a child with special needs, I would recommend consistent reassurance that you will have a routine at home just like you would during any school break. You might show him/her a visual schedule that you can make in Choiceworks (one of my favorite apps on an iPad or iPhome). You can also make a social story about what you will do during the strike. This can easily be made in Word or Pages (iPad/iPhone app). Think about what you will do each day as if you were on a school break/staycation and include this in the social story. The strike will not last forever!

3. Tips for Quelling Anxiety:

 A) Explaining the word STRIKE
STRIKE is a scary sounding word and all of the images are frightening to many children. You know your child best and his/her language abilities. STRIKE may need to become another word for teachers meeting. Your child probably can’t understand the concept of protest yet, but I think these two books , Lame Duck Protest and Click, Clack, Moo Cows, do a wonderful job of explaining the concept with the help of some frustrated ducks and farm animals.
B) Reassurance that your child’s teachers will be returning to school and that his/her regular school schedule will return!!!
C) Your child may be worried about many things! You know your child best, but some concerns may be:
• What will I do instead of going to school?
• Who will take care of me if mommy and daddy are at work?
• When will I go back to school? VERY SOON!
• Will everyone be back at school when it starts again?
• Will my teacher be ok? Remember STRIKE is a scary word and so are those images. You may need to create a social story that includes something like “my teacher will be at home too” or “my teacher will be spending time with other teachers at an important meeting.” Lots of reassurance that he/she is ok, safe and happy!
D) Helping your child name his emotions and how his body may be feeling. Just like the Choiceworks companion books about “When I am ANGRY” he/she may need one created about how he/she feels when she/he is feeling anxious and what he/she can do to feel calmer and more in control.
F) Journaling with him/her to work on social-emotional and academic development. Read this blog post for ideas!

Need more support? Feel free to contact me with questions!

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iPad + Autism Education: Summer Journaling Project!

August 8, 2012

It is summer vacation time! Many of the families that I work with are getting in some much needed family time on vacations or staycations! Many have asked me what they can do to keep their kids occupied and work on some back-to-school skills while they are away! Who wants to lug around art supplies [...]

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Fine Motor Skills PLAY Ideas: Back-to-School SKills and Shoe Tying

August 6, 2012

  This is a continuing series of play ideas from a recent collaboration with the fabulous Building Blocks Toy Store to develop a special needs section of their website! I love having a neighborhood toy store that is committed to helping ALL kids learn and play! The start of school is approaching and many parents have [...]

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August Event: Back to School with Sensory Kids!

July 27, 2012

I’m excited to team up with the wonderful Sensory Kids™ Store in Lincoln Square for a fun back-to-school event on August 22nd! Back to School with Sensory Kids!  Wednesday August, 22nd 6pm-8pm @The Sensory Kids™ Store at Bellybum   Tamara Kaldor, Developmental Therapist and Director of Chicago PLAY Project, will share simple strategies for supporting [...]

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Summer PLAY Ideas for Children with Autism and Sensory Processing Disorder (SPD)

July 17, 2012

It is another hot week in Chicago! Are you looking for new PLAY ideas? I recently helped the fabulous Building Blocks Toy Store develop a section on their website devoted to toys to support children with special needs developmental, educational and therapeutic goals! I love having a local business committed to helping ALL families and [...]

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PLAY Project Videos: Autism Therapy Program Connects Families

July 16, 2012

This is a very moving video from a grandmother reflecting on her experience and her granddaughter’s development after being in PLAY Project! To learn more about the PLAY Project you can go here! To see more PLAY Project videos go here!

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iPad and Autism: iPad Communication Video and 60 Minutes!

July 16, 2012

This popular 60 Minutes segment on the iPad and Autism ran again tonight! You can check out my upcoming iPad presentation with Jordan Sadler, SLP of Communication Therapy at Erikson Institute’s TEC Center on September 18th (to preview our 3 hour intensive “I have an iPad…now what?’ workshop at Erikson on Saturday, November 3, 2012)!

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Social Groups for children with Autism (ASD), Sensory Processing Disorder (SPD) and Developmental Delays (PDD-NOS)

April 13, 2012

We are excited to offer some really fun spring and summer social groups! Don’t see a date and time that works for you? Please contact us and let us know what you are looking for! Spring Social Groups: Boys Saturday Sensory Playdate A social playgroup for boys, Ages 3-4 yrs. April 28th-June 2nd Time: 9:30am-10:30am Cost: $85/session *must [...]

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The PLAY Project and NPR’s All Things Considered!

April 11, 2012

Dr. Solomon and The PLAY Project were featured on NPR’s All Things Considered! Read and listen to the story here to learn more about about the role of play and autism: http://www.npr.org/local/stories/Michigan-Radio/150313866  

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